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Medicare With Kidney Failure or ALS: When Coverage Starts

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Written by My65 Playbook Editorial Team

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If you are turning 65 and enrolling because of age, this article is not for you; see the Initial Enrollment Period rules on Medicare.gov instead.

With kidney failure, Medicare usually starts on the first day of the fourth month of dialysis, at any age. With ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease), Medicare starts the month your Social Security disability benefits begin. Neither has the usual 24-month wait.

Key takeaways

  • Kidney failure: Medicare usually begins the first day of the fourth month of regular dialysis.
  • Home dialysis training in the first three months can move the start to the first month of dialysis.
  • A kidney transplant can start coverage the month you enter a Medicare-approved hospital for it.
  • ALS: Medicare begins the same month your Social Security disability benefits begin.
  • Sign-up differs: with kidney failure you must apply. With ALS, Part A and Part B start on their own.
4th month
Month of regular dialysis when Medicare usually starts for kidney failure
Source: medicare.gov
Home dialysis training or a transplant can move this date earlier.

Who can get Medicare for kidney failure?

  • Your kidneys have stopped working for good
    You need regular dialysis or have had a transplant
  • You have enough work credits
    Social Security, Railroad Retirement Board, or government work
  • Or you already get Social Security or railroad benefits
  • Or you are the spouse or dependent child of a worker who qualifies
Age plays no part, so a child or a 40-year-old can qualify through a parent's or spouse's work.

Medicare uses the term ESRD (end-stage renal disease, meaning your kidneys have stopped working for good). You need regular dialysis or a kidney transplant. Age does not matter.

You also need a link to the work system. You qualify if you have enough work credits under Social Security, the Railroad Retirement Board, or as a government employee. You also qualify if you already get Social Security or railroad benefits.

The work can be someone else's. A spouse or a dependent child of a worker who meets the rule can qualify too. Learn how credits add up in Medicare Part A Premium: Work Credits and Who Pays Nothing.

You must also be a U.S. citizen or national, a green card holder, a Cuban-Haitian entrant, or a COFA migrant (a person lawfully living here under a Compact of Free Association). If you are unsure, ask Social Security or 1-800-MEDICARE.

When does kidney failure coverage begin?

  1. Month 1
    Regular dialysis begins
    Example: March 10
  2. Months 2 and 3
    Dialysis continues
    Apply through Social Security now
  3. Month 4
    Medicare starts on the first day
    Example: June 1
Applying during the first three months lets your card arrive near the start date.

For regular dialysis at a center, Medicare starts on the first day of the fourth month. Say your dialysis starts on March 10. March is month one, so Medicare starts on June 1.

Home dialysis training can move the date up. If you join a training program at a Medicare-approved facility in your first three months, coverage can start the first month of dialysis. You must expect to finish training and do your own dialysis.

A transplant has its own rule. Coverage can start the month you enter a Medicare-approved hospital for the transplant or care before it. The transplant must happen that month or within the next two months.

If the transplant is delayed more than two months, coverage starts two months before the month of the transplant.

How do the start dates compare?

Illustration for: Medicare With Kidney Failure or ALS: When Coverage Starts
The kind of dialysis you start with can change your Medicare start date.
Your situationWhen Medicare can startWhat has to happen
Dialysis at a centerFirst day of the fourth monthRegular dialysis keeps going
Home dialysis trainingFirst month of dialysisTraining starts in the first three months
Kidney transplantMonth of hospital admissionTransplant within two months of admission
ALSMonth disability benefits beginSocial Security approves disability benefits

The table shows one pattern. Home training and a transplant can start coverage sooner than center dialysis alone. ALS coverage follows your disability benefits, not a dialysis clock.

How does Medicare start with Lou Gehrig's disease?

0 months
Medicare waiting period after disability benefits begin for people with ALS
Source: ssa.gov
Others on disability wait 24 months; with ALS, Medicare starts with the first benefit month.

People under 65 on disability benefits usually wait 24 months before Medicare begins. That wait is explained in Medicare Before 65 With a Disability: The 24-Month Wait. People with ALS skip it.

With ALS, Medicare starts the month your Social Security Disability Insurance (SSDI, monthly payments for workers who can no longer work) begins. A 2020 law also removed the five-month wait for SSDI for people with ALS.

So the steps are short. Apply for SSDI at ssa.gov or by phone. Once you are approved, Medicare comes with it.

Do you have to sign up yourself?

Kidney failureALS
Sign-upYou apply through Social SecurityAutomatic once disability benefits begin
Usual startFirst day of the fourth dialysis monthMonth disability benefits begin
Medical formYour center files a medical reportPart of your disability claim
Who pays first with a job planJob plan, for 30 monthsDepends on employer size
With kidney failure, nothing happens until you apply, so the application is the step to take.

With ALS, no. Social Security enrolls you in Part A and Part B and mails your Medicare card. You can turn down Part B. If you keep it, the 2026 standard Part B premium is $202.90 a month; it is set each year.

With kidney failure, yes. You apply through Social Security. Your dialysis or transplant center fills out a medical form, the ESRD Medical Evidence Report, to show your diagnosis.

If you apply late, kidney failure coverage can sometimes be back-dated up to 12 months. Ask Social Security to use your real start date when you apply.

Part A covers hospital stays, including a transplant stay. In 2026, the Part A deductible is $1,736 per benefit period; it can change each year. Part B covers outpatient dialysis and doctor visits, with a 2026 deductible of $283 that is set each year.

What if you have job-based health insurance?

30 months
Coordination period when a job-based plan pays before Medicare for kidney failure
Source: medicare.gov
After the 30 months, Medicare becomes the main payer and your job plan pays second.

With kidney failure, a job-based or union group health plan pays first for 30 months. This is called the coordination period. Medicare pays second during that time.

After 30 months, Medicare pays first and the job plan pays second. The 30 months start when you could first get Medicare, even if you have not signed up yet.

This rule is only for kidney failure. With ALS, who pays first depends on your employer's size and other rules. Your plan's benefits office can tell you its order of payment.

Can you join a Medicare Advantage or drug plan?

Illustration for: Medicare With Kidney Failure or ALS: When Coverage Starts
Listing every drug, including anti-rejection drugs, lets you compare plan drug costs fairly.

Yes. Since 2021, people with kidney failure can join Medicare Advantage plans (private plans that cover Part A and Part B services). Plan networks, costs and rules vary by location and carrier. A plan's out-of-pocket limit covers Part A and B services only, not drugs or premiums.

Drug costs matter with dialysis and transplants. In 2026, Part D drug plans cap your out-of-pocket drug costs at $2,100 a year; the cap is set yearly. A plan's deductible can be up to $615 in 2026, and some plans charge less.

If money is tight, look into Extra Help (a program that lowers drug costs). In 2026, the income limit is $23,475 a year for one person. See Extra Help (LIS): Do You Qualify, and Its Value.

Medigap (a policy that helps pay Original Medicare's share of costs) is harder under 65. Federal law does not make insurers sell it to people under 65. Some states do, and your State Health Insurance Assistance Program (SHIP) can say what yours requires.

When does kidney failure coverage end?

  1. Dialysis stops
    Month dialysis ends – 12 months later
    Coverage ends if kidney failure is the only reason
  2. Kidney transplant
    Transplant month – 36 months later
    Coverage ends if kidney failure is the only reason
Restarting dialysis or a new transplant within these time frames brings coverage back with no new wait.

If kidney failure is your only reason for Medicare, coverage can end. It ends 12 months after the month you stop dialysis. After a transplant, it ends 36 months after the transplant month.

Coverage comes back with no new wait if you restart dialysis or get a transplant within those time frames.

After a transplant, you may be able to keep a Part B benefit that pays only for your anti-rejection drugs. This applies if you have no other health coverage. Ask Social Security about it before your 36 months end.

With ALS, Medicare stays as long as you get disability benefits. At 65, your Medicare continues based on age.

Illustration for: Medicare With Kidney Failure or ALS: When Coverage Starts
A call to 1-800-MEDICARE can confirm your start date before your first bill arrives.Photo: RDNE Stock project / pexels

Check your own dates at Medicare.gov or by calling 1-800-MEDICARE. Plan details vary by location and carrier.

Have questions? Call 1-877-443-3251 to talk it through with a licensed insurance agent. You never pay the agent; the plans they represent do, and the decision stays yours.

We do not offer every plan available in your area. Please contact Medicare.gov or 1-800-MEDICARE to get information on all of your options. Medicare has neither reviewed nor endorsed this information.

What to do this week

  1. Write down the date your regular dialysis started, or the date Social Security approved your disability benefits.
  2. Count to your fourth dialysis month and mark the first day of that month on your calendar.
  3. Call Social Security or visit ssa.gov to apply for Medicare for kidney failure, or for disability benefits if you have ALS.
  4. Ask your dialysis or transplant center to confirm it has sent your ESRD Medical Evidence Report to Social Security.
  5. List every prescription you take, with doses, and enter them in Medicare's Plan Finder at Medicare.gov.

A real example

Luis, 52, works full time and has insurance through his job. His kidneys fail, and he starts regular dialysis at a center on September 14, 2026. He counts the months: September is month one, so Medicare can start December 1, 2026. In October he calls Social Security and applies. His dialysis center sends his ESRD Medical Evidence Report. His own work credits meet the work rule. Because he has a job-based plan, he learns it pays first for 30 months and Medicare pays second. He signs up for Part A and Part B, notes the 2026 Part B premium of $202.90 a month, and confirms with Social Security that his coverage begins December 1, 2026.

Medicare Disclaimer

We do not offer every plan available in your area. Please contact Medicare.gov or 1-800-MEDICARE to get information on all of your options. Medicare has neither reviewed nor endorsed this information.

Frequently asked questions

I just started dialysis. Do I have to wait two years like other people on disability?

No. The 24-month wait does not apply to kidney failure. Medicare usually starts on the first day of your fourth month of dialysis, or sooner with home dialysis training or a transplant. Apply through Social Security in your first three months.

I have ALS. Will Medicare sign me up, or do I have to do it?

Social Security does it for you. Part A and Part B start the month your disability benefits begin. Apply for disability benefits at ssa.gov, then watch your mail for your Medicare card.

I never worked much. Can I still get Medicare for kidney failure?

You may still qualify. A spouse's or parent's work record can count if you are their spouse or dependent child. Bring their Social Security number when you apply, and ask Social Security to check both records.

My job insurance is good. Why should I sign up for Medicare at all?

That is a fair question. With kidney failure, your job plan pays first for 30 months, and Medicare pays second. Medicare can pick up costs your job plan leaves behind. Ask your plan's benefits office how it pays alongside Medicare, then decide.

I got a kidney transplant. Will my Medicare stop?

It can, if kidney failure is your only reason for Medicare. It ends 36 months after the transplant month. You may be able to keep a Part B benefit for anti-rejection drugs if you have no other coverage. Ask Social Security before month 36.

Can I join a Medicare Advantage plan with kidney failure?

Yes, since 2021. Enter your ZIP code, doctors, dialysis center and drugs in Medicare's Plan Finder to see which plans list them. Plan details vary by location and carrier.

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